Lexi has a neurological condition called kernicterus as a result of very high bilirubin (jaundice) in the days and weeks after her birth 10 years ago. She is extremely intelligent but can't yet sit up, walk, talk, or hold anything in her hands unaided. On July 29 2009, she became the first person to have a procedure called Deep Brain Stimulation (DBS) for her condition. The surgery was performed at the Medical College of Virginia in Richmond in an attempt to help manage her severe movement disorder. The procedure has helped reduce Lexi’s abnormal muscle tone, however she now needs intensive rehabilitative therapy not offered in our state to help her develop functional motor patterns.
Lexi's Song
Watch this special video by Andrew Lane and Macy Kate
Lexi's Song is available for download on ITunes, Amazon & Google Play
Watch this short video recorded just after Lexi's surgeries in July and August of 2009
